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Picture of Lisa
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By best friend is now 32 and had a kidney transplant three years ago in November. She had been on dialysis, both hemo and peritoneal, since she was 21 - about 9 years prior to the transplant. The kidney is doing excellently, so much so that she gave birth a few months back to a beautiful and healthy little girl. My friend just got a letter from Medicare saying that as her "36" months are up, she will no longer recieve the prograf after November, which costs 800.00 a month. Her other insurance will cover 40% but this leaves a struggling family with nothing at all to pay for the other 60%. Does ANYONE know of ANYTHING that may help. . A program, a trust. . anything?????? We're desperate, scared and unsure. Anyone with anything would be appreciated. Thanks.
 
Posts: 14 | Location: Philadelphia, PA USA | Registered: 06-03-02Reply With QuoteEdit or Delete MessageReport This Post
Diamond Enthusiast

Picture of Lydia
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Does your friend also live in Pennsylvania?
 
Posts: 4519 | Location: ~somewhere else~ | Registered: 06-03-02Reply With QuoteEdit or Delete MessageReport This Post
Diamond Enthusiast

Picture of Lydia
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Been doing some searches to see what I could find...not coming up with as much as I would have liked, but I'm sure there are things out there...

Here is one thing I came across - a company that is part of a Patient Assistance Program that includes Prograf as one of the medications...Fujisawa Healthcare, Inc. Patient Assistance Program Rod Baskin 3 Parkway North Center Deerfield, Ill 60015-2548 800-727-7003

I have no idea how the above program works, but worth a call...

I'd also suggest that she find some support groups in her area - they are oftentimes a source of contacts for purposes like this.

I'm still looking and will post what I can find...
 
Posts: 4519 | Location: ~somewhere else~ | Registered: 06-03-02Reply With QuoteEdit or Delete MessageReport This Post
Diamond
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"In 1986, Congress directed Medicare to begin funding 80% of the cost of immunosuppressive drugs for one year following a kidney transplant under Medicare Part B. But as more recipients with functioning grafts exceeded the one-year post-transplant milestone, those on Medicare were without coverage due to the time limit on their immunosuppressive benefit. Congress was persuaded to phase in additional coverage to 36 months by 1995. The immunosuppressive medication coverage was extended further to 44 months in 2000, but only for those Medicare beneficiaries currently entitled to Medicare due to disability or age 65 or over. Kidney transplant recipients who were entitled to Medicare solely as the result of their ESRD were always limited to Medicare entitlement for only three years post transplant. Therefore, kidney transplant recipients not entitled to Medicare because of SSDI or who are not age 65 by the time their ESRD-Medicare terminates are limited to 36 months of medication coverage. "

Hopefully your friend qualifies for this "Any age, Medicare: Transplant several years ago. If Medicare originally paid for the transplant and the recipient has continued to be Medicare eligible but lost the immunosuppressive drug benefit due to a previous time limit, then he or she would be eligible to have the benefit restored. "

It seems very confusing... I would suggest you call your congress person if you can't figure out all the bureaucratic nonsense.
 
Posts: 3056 | Location: USA | Registered: 06-04-02Reply With QuoteEdit or Delete MessageReport This Post
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