Does anyone here have, or know someone who has, fibrodysplasia ossificans progressiva? This is the disease that slowly turns muscle tissue into bone. I am doing a research paper on it and would really like to talk to someone who has it, but I surely hope it's not you. It is VERY rare, so if you don't know anyone, thank your lucky stars.

Thanks for any help.

Catty

Yee-ouch, Catty. No, I don't think I know anyone who has this, thank goodness...

Cattywampus, I found this page that may help you for your research.
International fibrodysplasia ossificans progressiva Association
It includes pictures and comments of members and relatives of people who are suffering from this disease.
It also includes links to other similar pages.
Good luck

Thank you very much, Lucy. I just did a reasearch paper on it as I think I said and that site provided me with a lot of good information.

Catty